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This website page is intended for members of the UK general public. It provides some general information about epilepsy.
Epilepsy is a chronic brain disease that can affect people of all ages. Read on to learn about the main types of epileptic seizures, how they affect people, and how epilepsy is diagnosed and treated.
Epilepsy is a condition that affects the brain. People with epilepsy have a tendency to experience frequent seizures.
Seizures are caused by a disturbance in the brain’s electrical activity, which temporarily affect how it works. This causes a huge range of symptoms, from becoming stiff or staring blankly into space, to uncontrollable shaking or jerking.
There are many types of epilepsy, including focal epilepsy, generalised epilepsy, and combined generalised and focal epilepsy. Doctors will investigate the types of seizures that are experienced and what has caused them to help them to classify the type of epilepsy.
In some seizures people remain alert, while others can cause loss of awareness. They may cause shaking and jerking or give people unusual sensations. The main seizure types and their symptoms are covered in detail in the symptoms section below.
Epilepsy is one of the most common neurological (meaning it affects the nervous system) conditions in the world.
Around 50 million people worldwide have the condition, however, it is estimated that up to 70% of people with epilepsy could live seizure-free with the correct diagnosis and treatment.
In the UK, there are more than 600,000 people living with the epilepsy.
Epilepsy can come on quite suddenly and can start at any age. Anyone can have a single epileptic seizure, and this does not necessarily mean you have epilepsy. Often, epilepsy is a life-long condition but can sometimes improve over time.
The main symptom of epilepsy is epileptic seizures. These are caused by sudden bursts of electrical activity in the brain which disrupt the function of the brain and mix up its usual messaging. Depending on which part of the brain is involved, seizures can affect people in different ways.
The main symptom of epilepsy is recurrent seizures – these are often unpredictable and episodic, which means that they come and go. However, many people find it helpful to keep track of what happens before each seizure to help them build up a better understanding of any warning signs that are typical for them.
Most people with epilepsy have seizures that last for a short time (less than five minutes) and stop by themselves. But sometimes, a seizure can last longer than five minutes, or multiple seizures can happen with no recovery time in between. This is known as ‘status epilepticus’ and emergency assistance and/or medication may be required to end the seizure as quickly as possible. Make sure you call an ambulance if someone has a seizure that lasts longer than 5 minutes.
Seizures are categorised into focal, which start in one side of the brain, and generalised, which involve both sides of the brain from the start.
Focal seizures are generally brief, lasting less than two minutes.
Focal aware seizures are sometimes called ‘auras’ and are often seen as a warning that another type of seizure is going to happen. These can involve a feeling of déjà vu (feeling like you’ve been here before), suddenly feeling intense fear or joy, tingling in the arms and legs, stiffness or twitching in the body, unusual tastes or smells and a ‘rising’ sensation in the tummy.
The causes of epilepsy are complex and not always easy to identify, in up to 50% of people the cause is unknown. It could be a result of a person’s genetics, a structural change in the brain or other comorbidities such as brain tumours and infectious diseases, such as meningitis and viral encephalitis. Certain events can also make epileptic seizures more likely, such as lack of oxygen to the brain, or brain injury from an accident or a stroke.
Seizures can come on randomly, but many people find that certain factors can trigger them, including lack of sleep, stress, medication, drugs or alcohol, waking up, menstruation and flashing or flickering lights. These factors do not cause epilepsy in themselves, but they are common triggers of epileptic seizures.
People who are diagnosed with epilepsy tend to experience repeated seizures. Having a single seizure doesn’t mean you have epilepsy, however, if you have experienced a seizure ensure that you talk to your GP or primary care giver straight away so that they can begin exploring the cause.
First, doctors will look to determine whether the seizures you are experiencing are starting in the brain or not. Other types of seizures, such as those caused by low blood sugar or heart problems, are not associated with epilepsy.
If they believe it may be epilepsy, you will usually be referred to a neurologist, which is a doctor who specialises in conditions affecting the brain and nerves.
There is no single test to diagnose epilepsy, so it can be a lengthy process while doctors look at a range of information to find out what’s causing the seizures. Often, the symptoms can appear similar to other conditions like panic attacks, migraines or fainting, so any specific information you can provide about your seizures will be helpful.
Once your doctor has a clearer picture of the seizures you’re experiencing, they may suggest some tests. These will help them to gather more information for a diagnosis and to rule out other causes, but the tests can’t confirm or dismiss epilepsy on their own.
If you have been diagnosed with epilepsy there are a range of treatments available including medication, surgery and stimulation treatments. While epilepsy cannot generally be cured, with the right treatment many people are able to keep seizures under control or even stop them altogether.
Treatment plans are tailored to the individual and depend on their age, the type of seizures they experience and any other medical conditions they may have. You may be asked to keep a seizure diary to give doctors a better picture of your seizures and help them recommend the best course of treatment.
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